Tag Archives: Marfan Syndrome

‘My Transgender History’

‘My Transgender History’

A2N0Y6A posted a photo:

'My Transgender History'

[ Copy + Paste @ translate.google.com ]

Last night before i finally fell asleep i realized i’ve not explained my personal history in some ways on the few Transgender related posts i have here. Today as i slowly wake up, still tired from sleep medication i had to take to cure insomnia i decided i would finally do this.

I knew from a very young age something didn’t quite fit with me, it wasn’t until age 10 in 1985 i saw Transgender people on a Television talk show that i finally understood what i felt and why. Before that day it was confusing, difficult and stressful. Even though that Television show was anything but kind to folks like me, i’ll never forget how happy i was i finally realized i wasn’t alone.

Where i grew up was very intolerant to LGBT people, it also was during a chapter in American history where acceptance and understanding was lacking on a whole but where i am from it was especially ignorant and hateful. I spent my entire teenage life living in fear people would realize this about me and i finally left and moved to Seattle in 1994 at age 19 where i knew i would have freedom to experience a life i wanted.

Age 20, i came out as ‘Bisexual’. I lost friends, i lost my housing and it was traumatic. I still wasn’t ready to be open about my gender and like many i tried to find a balance in living in a cisgendered world and having a private life where i could express this aspect of who i am. It worked for the most part although i wasn’t truly happy or free to be myself.

During my 20’s i focused on my career path and chose to silently struggle unable to be open and honest about my feelings in this way. Had i not chosen that path, i absolutely would have been denied opportunities i enjoyed during those years in employment in both the private sector and working for various Government agencies. I was torn between loving what i did for work and knowing i couldn’t be free to be myself and maintain that life.

In 2004 while working for the State of Washington, i had another serious lung collapse. I have Marfan Syndrome and i was born with tiny blood blisters in the linings of both my lungs due to this. When they ‘pop’ this causes my lung(s) to collapse and i’ve had emergency procedures involving a tube struck between my ribs for days at a time to lessen the pressure in my chest from escaping air. None of it was fun and it was absolutely scary and painful. When this happens, if you don’t have this procedure done soon, your chest fills with air and makes it difficult to breathe and can also affect your heart’s ability to pump blood. It’s a very serious situation and i’m lucky to have survived it.

en.wikipedia.org/wiki/Marfan_syndrome

en.wikipedia.org/wiki/Pneumothorax

This collapse however i had in 2004 was worse than previous ones. The chest tube procedure didn’t fix it, being admitted to the hospital and having them manually remove air from my chest which was one of the most painful things i’ve endured in life didn’t fix it. I was then scheduled for emergency surgery to save my life.

I had the entire top of my right lung removed, they then manually damaged the outside of my lung and used powder to force my lung to adhere to my inner chest wall during healing. I spent 5 days with an epidural needle in my spine, blacking out from excruciating pain several times every hour with drainage tubes sewn into my side. It took me years to recover from it and now i still occasionally tear scar tissue when sneezing in certain positions or when trying to lift something heavy in certain ways. But, i am fortunate to be alive and thankful it worked.

en.wikipedia.org/wiki/Pleurodesis

The night before that emergency surgery i sat in the hospital bed waiting for this operation. I was forced to think about my life, 29 years of so many things i had experienced, survived… overcoming drug addiction in my early adult life after it nearly caused my death, loss of my Mother as a teenager and many other painful chapters i endured. I thought to myself “Do i have any regrets? Is there anything i would change if i lived through the surgery the next day? Have i lived a life that was meaningful or did i not fully realize my purpose?”

The one thing that hurt me that night before surgery, the one thing i realized i couldn’t live with if i did survive was knowing i had never been free to be myself. I was scared to be open about my gender identity, i was scared i would lose friends as i had when coming out as Bisexual a decade prior, i was scared my family would disown me or not understand and i was scared it would impact my employment.

6 months after that surgery i was finally healed enough to be ready to speak openly, to tell my family i wanted to pursue this, i intended on changing my name and also i finally felt ready to confront friends and my employer with this reality.

I lost friends again, some family members became distant with me as expected and even though Washington State was working on including LGBT people in Civil Rights Law which had not yet passed, my life became a nightmare of hate towards me. My career was destroyed and in the end it altered the course of my life in many difficult ways.

lawfilesext.leg.wa.gov/biennium/2005-06/Pdf/Bills/Session…

The reality is, i’m proud to be what i am but it has come at great expense. I would never change any of this but i will admit it was a tough journey to get to where i am now finally on hormones after many years of struggling with it all during homelessness.

My photography exists ONLY because of these events… None of you would have ever met me here, seen photographs from me if this had not happened. I likely would be working for another Government agency and would be unwilling to be such a public person given that. I likely would have continued with music which i loved in my free time but i had no desire to be known, i just did it because music was my great artistic passion then.

anyaadora.bandcamp.com

This tattoo on my neck, photographed before my Mohawk returned, i have chosen because who i am and how my life has changed through these events defines me now in so many ways. I may not be the average transgender person in many ways but we are all different, our stories all vary and generally speaking.. It’s not easy for us. I want people to understand this and how much we give up, how much bravery, strength and determination it takes to be one of us.

Those who hate us lack the courage to be one of us is my view. It’s easy to show hate but it’s far less easy to endure it.

tdor.info

It’s easy to be a bigot & a bully, it’s far more difficult to be an educated person and respect others for their differences at times but many manage to do it who aren’t LGBT every day.

linktr.ee/transgender

Perhaps this info today helps those who’ve become friends here and those who visit me attempting to understand me or people like me better. It’s different for everyone but, this is my story and how i arrived here being the person before you all today.

www.flickr.com/photos/a2n0y6a/49129982647/

‘Vision Board: Mr. Right’

‘Vision Board: Mr. Right’

A2N0Y6A posted a photo:

'Vision Board: Mr. Right'

This photograph i had shot earlier this year in Downtown Seattle and had titled it ‘Date Night’. It was shot right before a date with one of the gentlemen i’ve dated in 2019 thus far.

Tonight after thinking about a brief encounter with a very handsome Gentleman from London (Explained on my previous post this AM), i began thinking about what would be the ‘Perfect Guy’ for me in all honesty. I didn’t go out shooting new works last night and it’s now a slow Saturday morning in Downtown Seattle, perhaps tonight i’ll get out there.

Whenever i think about this topic i usually tend to view a lot of very handsome hunks here in Flickrland, there’s no shortage of them. Men with muscles, men in suits, men who are perhaps the standard definition of ‘hot’, people who could easily score modelling contracts are the ones i seem to like as most folks do.

Reality is though, i don’t have a physical standard of beauty that defines men i date. I’m more attracted to personality to be completely honest. I don’t care about money, i have very little and life is often tough because of it. I don’t care about a guy who is perfect, i’m disabled and struggle sometimes being bipolar although these days it’s much better finally having the right help and right medication.

I like men who are real, genuine people. I like men who can speak to me freely, share their feelings and struggles with me should they want to and need someone to open up to. I like men who are sincere, genuinely nice people. I dated a guy who intentionally stepped on an insect outdoors and then joked about kicking a bird earlier this year which still hurts my heart. That absolutely is NOT the kind of person i want to be with and big surprise, that didn’t work out.

I love all people, i can’t date a racist or bigot in any form. I couldn’t be with someone who’s trying to convert me to some faith i don’t have and equally i couldn’t date someone who is a complete a-hole belittling others for having faith themselves. That’s something i’ve encountered before which seems highly ironic given they are asking for the freedom not to have faith and then judging others who have it in a blanket way which is equally as absurd as religious zealots demanding we all believe something in the same way they do.

I need a man who is honest, i can’t stand dating people who are shady and just weird because they aren’t honest with anyone including themselves, i’ve also dealt with that in very short relationships. It was a HUGE turn off for me, makes no difference how handsome they are… If i can’t respect them and trust them as much as i need to, I’m not willing to be intimate which i think is fair and healthy on my end.

I want a guy who cares… someone who is willing to go with me to medical appointments i have that sometimes are serious or difficult for me. I have Marfan Syndrome and each year i have to have heart tests as well as tests on my lungs for a ton of nodules they’ve found to ensure they aren’t growing or spreading. So far i’m OK but it sucks going through that kind of stress alone, guys i’ve dated largely just care about me naked and not as much about my health overall which sucks. I’ve not had a serious lung collapse in years but it’s an ever present possibility i live with 24/7. It would be nice to know the next time it happens the guy in my life would actually be there when i’m having chest tubes placed to save my life.

I also need someone who understands my limitations. I don’t really like large crowds, i like smaller intimate settings better and sometimes i struggle with these things. It’s part of the mental health aspect of my disabilities. I can’t be with someone who expects or desires things from me i’m not able to do and who is understanding and still cares regardless… Perhaps someone else like me in these ways would be a good fit.

So, i know he’s out there and someday i’ll find him. Until then though i thought i would try this ‘vision board’ thing i’ve heard about and never done but with a photo on Flickr.

This combined with throwing coins into a local fountain wishing for a nice boyfriend finally should help if either work in any capacity. Maybe both combined will result in a guy who i end up marrying someday which would be even better. 🙂

? ? linktr.ee/anya.adora

www.flickr.com/photos/a2n0y6a/49038041626/